After five years of hard work, I am incredibly pleased to announce that Reclaim Health: a recovery strategy when doctors can’t explain your symptoms has now published. The book is written by a team including two expert ex-patients Julia and Janice, supported by two doctors David and Gina, with Helen an expert personal and professional … Continue reading Reclaim Health: a recovery strategy when doctors can’t explain your symptoms
As a patient I have witnessed the need to bring together a fragmented team to create personalised medicine. My experience of hospital and GP contacts: Long waits! Seeing a consultant neurologist privately – after waiting over 16 weeks for an NHS appointment. August 2017: Brief neurological assessment; blunt ‘you have Parkinson’s Disease’. Medication only offered … Continue reading How do we more fully see the whole person behind the clinical diagnosis of Parkinson’s disease?
A New Year and ‘I’m still standing’ in the words of the Delta blues singer Mississippi Fred McDowell. The song accompanies me when I do my exercises in the morning. Happy New Year. Looking back I have probably had symptoms of Parkinson’s Disease now for 10 years – marked stiffness around my neck and shoulders … Continue reading Reflections on living with Parkinson’s Disease in the last year