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How can current Parkinson’s Services be improved?

After three years of living with the diagnosis of Parkinson’s Disease, I have begun to formulate some thoughts and suggestions for improving current Parkinson’s services. These suggestions are based on my personal experience as both a doctor and patient, and fit into five main categories: presenting symptoms, specialist referral, secondary care consultation, medical research, and … Continue reading How can current Parkinson’s Services be improved?

Being Human: PNI and the links between stress and dis-ease

I am currently re-reading a book called When the Body Says No - The Cost of Hidden Stress by Gabor Maté. Descriptions of many medical stories are detailed where serious ill-health is a consequence of sustained stress. Our book Reclaim Health also details symptoms resulting from chronic stress that are often misinterpreted as due to … Continue reading Being Human: PNI and the links between stress and dis-ease

Reclaim Health: a recovery strategy when doctors can’t explain your symptoms

After five years of hard work, I am incredibly pleased to announce that Reclaim Health: a recovery strategy when doctors can’t explain your symptoms has now published. The book is written by a team including two expert ex-patients Julia and Janice, supported by two doctors David and Gina, with Helen an expert personal and professional … Continue reading Reclaim Health: a recovery strategy when doctors can’t explain your symptoms

How do we more fully see the whole person behind the clinical diagnosis of Parkinson’s disease?

As a patient I have witnessed the need to bring together a fragmented team to create personalised medicine. My experience of hospital and GP contacts: Long waits! Seeing a consultant neurologist privately – after waiting over 16 weeks for an NHS appointment. August 2017: Brief neurological assessment; blunt ‘you have Parkinson’s Disease’. Medication only offered … Continue reading How do we more fully see the whole person behind the clinical diagnosis of Parkinson’s disease?

Reflections on living with Parkinson’s Disease in the last year

A New Year and ‘I’m still standing’ in the words of the Delta blues singer Mississippi Fred McDowell. The song accompanies me when I do my exercises in the morning. Happy New Year. Looking back I have probably had symptoms of Parkinson’s Disease now for 10 years – marked stiffness around my neck and shoulders … Continue reading Reflections on living with Parkinson’s Disease in the last year